Fixated upon the pause mode, I squirm like a hapless insect caught within a spider’s web. Time gorges my days, swallowed whole: such teeter upon psychic indigestion, mess with routines of self-care, and plunge me into tomorrows when I’m not ready to go there. My controller still wants to call the shots, despite my practice of Step II, like spidery webs torn asunder by wintry winds.
Yet, like the insect, I remain dazed, powerless to change my present circumstance: I do have ILD with rheumatoid arthritis, a terminal disease that is shortening my life. But how? When? The dailyness of my symptoms renders me half-sick: weak, short of breath, and exhausted. Other annoyances, as well, irk me: Expelling infected mucus from my lungs eats into my afternoons; occasional brain fog scrambles for the next right word, both when speaking and blogging. Even my Dreamer seems to have dumped me.
Then, I remind myself that it’s not as if I’m preparing for an ice cream social.
I still benefit from the gift of time: Its windows correct bouts of impatience, with their disruptive playing cards, and enhance spiritual growth. That, alone, remains important. A second study of The Grace in Dying – How We Transform Spiritually as We Die awaits me; its dense material necessitates a calm mind and an open heart, deeper this time around.
Yet, I have come a long way since last November’s signing on for hospice’s palliative care. This is working out—my heartfelt thanks for coming along.
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